Hannah Grace from my cell phone! I love you, Hannah!
Headed to Children's Hospital
Today started our stressful and continued to be a high stress day. I constantly had to give my fears to God. I did my normal routine in the morning, I fed Hannah first and then took a shower. Today I had her in the bathroom with me while she sat in her little bouncy seat. I finish my shower and I'm drying off when I notice Hannah's looking blue again. I right away grab her and watch and listen for breathing. Well I hear and see no breathing. So I decide I need to do CPR. I'm getting ready I lay Hannah on the ground, I start ripping her clothing open so I can see her chest. (All the while I'm unclothed!) Anyway Hannah starts breathing again. I'm shaking by now and start crying. My baby was not breathing and I felt like her life was in my hands. (I know life is in God's hands) But I felt such a responsibility for my baby!
I finished getting ready this morning (little did I know I'd be wearing these same cloths for the next 3 days). I was praying alot for Hannah and for me for wisdom and strength! Mariam and Karen came over for a visit. I did not tell each of them that Hannah had a weird breathing episode today. But I did tell both of them that Hannah has been breathing weird lately! Mariam and Karen sat sweet holding Hannah. I warms my heart to see my friends hold and love on Hannah!
It is Saturday today so we are not doing school but we are doing stuff at home. Around 4pm, I was holding Hannah on the couch when I notice once again she is turning blue again! I watch and listen for breathing. She was not so I lay her on the ground to start CPR again today. Once again as I'm ripping open her clothing she starts breathing. I'm so relived! It is so hard to even comprehend the stress I felt caring for my baby today. But I got through it with God's help.
I went out to find Rick. I told him Hannah stopped breathing again. He told me to call Dr. Levine. Dr. Levine had given us his personal pager number. So I waited for him to call me back. When he called me back Rick came in and held Hannah for me. Dr. Levine told us to go to Children's and suggested we drive. While I was on the phone Rick came to me and told me Hannah turned blue again. Rick says we need to go now! I get off the phone and Rick is very stressed and urged that we need to go now. Hannah's breathing is not good. He told me now he understood my concern and my stress. We get ready to go.
I give instructions for dinner to Cassie. We leave in Martin's car. I'm sitting in the back of the car with Hannah so I can watch her breathing. I forgot all Hannah's supplies. I should have grabbed her feeding pump and her diapers, blanket and pacifier. And my breast pump. I totally forgot all the stuff.
While we were driving Rick called his mom and she went over to our house to be with the kids. (The kids could have handled everything without Rick's mom but she really wanted to help). I called my mom and told her we were heading to the hospital and to pray! I also called my friend to start the prayer chain.
As we are driving we get to Seattle, and we come to a stand still! How stressful to be in a traffic jam on the way to the hospital because your baby is not breathing right! Anyway Hannah seems to be doing ok, but then while I shine my little flashlight at Hannah I think she is turning blue again so I rip her out of her car seat to help her. She is fine. The traffic is not moving much so Rick told me to keep holding her. We finally get off the freeway, I am still holding Hannah in my arms. I continue to hold her all the way to Children's hospital. (I almost give my coat to a beggar on the side of the road. She had no coat and it was raining). We finally arrive at Children's Hospital in Seattle. Dr. Levine had called ahead and gave all Hannah's info to the receptionist so we did not have to do paperwork. We arrive and very soon we are walking back into the emergency room so the Doctors and nurses can help Hannah.
Right away they put oxygen and an IV on Hannah. She got a chest X-ray, CAT scan of her head, blood test. We went walking though the halls of Children's in the evening. The halls were dim and quiet. Her chest X-ray showed an enlarged heart and liver, her blood draw showed she has had low oxygen levels for a while already (see I knew it already), her CAT scan showed a smaller cerebellum (most likely just because of her Trisomy
While Hannah was sleeping sweetly in my arms, we were told Hannah is going to be admitted into the hospital. We just need to wait now for the nurse to come down from floor 2 to get her and us. So we waited a while. We waited for about 20 minutes and then the nurse came into Hannah's room. She took us though the maze of Children's hospital to her room on floor 2. I can't remember her room number but what I remember it was like 222. Anyway the nurse got Hannah and us all settled into her room. We have a roommate and she makes alot of noise at night. Anyway, Hannah's feedings were the nurses responsibly now not mine. We were also told that we could hold Hannah whenever we wanted but we were not to sleep in the chair with Hannah in our arms. What Hannah is used the sleeping right next too me in my bed. No wonder she wakes up alot at Children's. I sit with her alot in the night. I do try to lay her down so I could sleep to but she wakes up and then I get no sleep. I also continue to pump breast milk every 3 hours around the clock. Life in the hospital is no fun but we are thankful to be here with Hannah and hopefully we can go home soon.
Hannah's on oxygen with a nasal cannula. I'll get used to it but I feel so bad for Hannah, I'm sure it bothers her nose.
I love you Hannah so much! We will fight for you and for your life! You are a treasure and we are thankful to be your family!
Thank you to Marian and to Karen for your visit. Your visit truly blessed me. I loved seeing you hold Hannah. What a blessing you were to our family!
Isaiah 26:3-5
3 You will keep him in perfect peace,
Whose mind is stayed on You,
Because he trusts in You.
4 Trust in the LORD forever,
For in YAH, the LORD, is everlasting strength.[a]
5 For He brings down those who dwell on high,
The lofty city;
He lays it low,
He lays it low to the ground,
He brings it down to the dust.
Love, Sandi Kwant (Hannah's mommy)
No comments:
Post a Comment