Kwantfamily Corner: ♥Cassie and Hannah Grace♥

Hannah and I

This is my project display I did it on Trisomy 18

My project display.

In memory of Hannah Grace.

This is with it all set up at Friday school.

These are the stories That are on my display.

Trisomy 18

By Cassie Kwant

It is also known as Edward syndrome. It is a condition caused by having one extra chromosome on your 18 one .it occurs in about 1 out of every 3,000 babies. 50% of babies are still born. The baby boys have a higher still born rate than baby girls do. Which means that the girls do better with this condition that the boys do. When babies with this condition are born most babies are admitted to the NICU (neonatal intensive care unit) babies with higher birth weight will do better. Than ones with low birth weight. A lot of the time they have trouble gaining weight.

Trisomy 18

By Cassie kwant

Babies that have Trisomy 18 (the Dr. Say) live an average of six days. Ten % of them live to be a year old. One of the troubles that the babies have is breathing trouble most babies have to have a canula in there nose which helps them breath easier. The canula is hooked up to an air tank another problem that they have is feeding. Usually they are not strong enough to suck hard. And some times they will aspirate the milk. That means them milk goes down the wrong tube. So a nurse can put an NG tube down the babies nose to reach the stomach to make sure that the tube reaches there stomach 1^st you have to measure from the tip of there nose 2^nd to the tip of there ear 3^rd down to the nipple line. How ever many centimeters that it comes out to that is how far you put it in.

Hannah Grace

By Cassie

Hannah Grace is my little sister she has Trisomy 18. When she was born she weighted 4lbs 11oz. Babies with T18 are born small. When she was born she went in the NICU for only a week. She was not strong enough to suck so she had an NG tube put in to feed her. We were working on feeding therapy to help her to be able to feed by mouth. And make sure that she did not have trouble aspirating. Because a lot of babies with T18 do aspirate. She had some unique features that came from Trisomy 18 on her right hand her fingers were crossed. And on her left hand her pointer finger was crossed and she couldn’t bend it all of the way. So we call it the hook finger when she lifted it up. Because that is what it looked like. Her ears where placed a little bit lower that normal. And also the back of her head was a little pointed. And there was a little hole in my heart. The last few days she had trouble with pulmonary hypertension. That is when her lungs where not working right. And they where not cleansing the blood so she had high co2 levels in her blood.

The dr. said to my parents before Hannah was born that Hannah would not live past birth. And if she did she would live an average of 6 days. But she lived longer that that she lived 64 wondrous days with us.

What are the characteristics of Trisomy 18?
The genetic material from the extra eighteenth chromosome can cause a variety of problems with varying severity. Mildly to severely affected. This means that there is no hard and fast rule about what Trisomy 18 will mean for your child. However, information on Trisomy 18 shows that there is a high mortality rate for children with Trisomy 18 before or shortly after birth.
Typical characteristics of Trisomy 18 include: